People with intellectual disability may not be able to make informed choices about their own healthcare or other major life decisions. They may need support from parental figures, loved ones or other caregivers throughout their lifetime.

When should my child see their provider?

The earliest signs of intellectual disability are sometimes detectable during a child’s routine visits with their pediatrician. A standard part of these visits is the assessment of “ages and stages.” This compares your child’s growth and development to what’s expected at their age level. Keep in mind that there are other possible causes for a child to be behind on their pediatric milestones, such as a physical illness, psychiatric illness or specific learning disability.

If you have any concerns about your child’s development and whether they’re at risk for intellectual disability, talk to your child’s pediatrician. They can help you understand the situation better and offer guidance on what you need to do or can do to help your child.

What questions should I ask my doctor?

There are many questions you can ask your child’s healthcare provider that may help you better understand and support your child’s needs. Some of the questions you may want to ask include:

• How severe is my child’s learning disability?
• What are their strengths, and what are their challenges?
• What kinds of programs or support organizations are available in my area or online that can help me or my child?
• What kind of school programs exist to help my child with their education needs?
• Will my child be able to live independently, and if so, what kind of services might they need to do so?
• Does my child have any other conditions, and — if yes — are they treatable?